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The Boy Who Could Run But Not Walk: Understanding Neuroplasticity in the Child’s Brain
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Review
Neonatologist and clinical neuroscientist Pape argues that treatments for children with early damage to the brain, nerves, or spinal cord have not been ambitious enough. Her goal is "a cure for some, improvement for all." She criticizes the inertia she has observed in medicine that causes many primary care providers to postpone referring patients with cerebral palsy (CP) for treatment until symptoms become "bad enough" to warrant attention. Early intervention, she argues, produces far better results. She criticizes the same inertia for resisting challenges to the disproved yet still common belief that in many cases, rehabilitation is impossible and the best possible outcome is the child's condition failing to worsen. Using personal observations, case studies, and published research, Pape makes a convincing case for a more optimistic prognosis for children with CP. The book reads like an academic text, and the tone is likely too esoteric for general readers, but Pape's descriptions of a variety of treatments may provide useful updates for medical professionals, and the whole book will be interesting to parents and caregivers of children with cerebral palsy. (PUBLISHERS WEEKLY)“This book is chock-full of cases of children with cerebral palsy who vastly exceed their physicians’ expectations, as well as practical advice for parents and caregivers on how this can be done. Karen Pape, MD, is a pioneer, rightly demanding that colleagues integrate the new science of brain plasticity as it applies to these children, and this is her cri de coeur, recording not only the new breakthroughs, but effectively explaining why, tragically, so many families are still denied these important interventions.†(NORMAN DOIDGE, MD, AUTHOR OF THE BRAIN’S WAY OF HEALING AND THE BRAIN THAT CHANGES ITSELF)“The delightful history of a feisty, path-finding doctor on the way to helping every child with early brain injury to a better life. It’s chock-full of wisdom, deep scientific and medical understanding, wonderful practical advice, and justified hope.†(MICHAEL MERZENICH, PHD, PROFESSOR EMERITUS, UCSF, AUTHOR OF SOFT-WIRED, AND WINNER OF THE 2016 KAVLI PRIZE IN NEUROSCIENCE)“An affirmation of the life-changing benefits of neuroplastic healing and some powerful lessons for life.†(JAY GREENSPAN, MD, MBA, NEONATOLOGIST, PEDIATRICIAN-IN-CHIEF, A.I. DUPONT HOSPITAL FOR CHILDREN)“Accessible insights into breakthroughs in the understanding of neurological deficits in children, and exciting additions to the repertoire of available treatment methods.†(WARWICK J. PEACOCK, MD, DIRECTOR OF THE SURGICAL SCIENCE LABORATORY AT UCLA, PROFESSOR EMERITUS NEUROSURGERY, UCSF)“Never before has a book been written that so effectively marries science and story to help parents understand how they can improve their child’s potential.†(PROFESSOR IONA NOVAK, PHD, HEAD OF RESEARCH, RESEARCH INSTITUTE, CEREBRAL PALSY ALLIANCE, UNIVERSITY OF SYDNEY, AUSTRALIA)  “Dr. Karen Pape changes the paradigm ‘No hope of a cure’ to ‘Cure for some and improvement for all,’ giving children with brain damage a reason to fight.†(LORENZO BELTRAME, PROFESSIONAL TENNIS PLAYER AND COACH, AWARDED COACH OF THE YEAR AND “DOC†COUNSILMAN SCIENCE AWARDS BY THE UNITED STATES OLYMPIC COMMITTEE)
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About the Author
Karen Pape, MD, FRCPC, is a neonatologist and clinical neuroscientist. As a medical innovator, she is challenging the system to raise expectations for babies born with early brain and nerve injury. She was a neonatologist and director of the Neonatal Follow-up Clinic at Toronto’s renowned Hospital for Sick Children, with an additional research fellowship in Neonatal Pathology and Ultrasound Brain Scans in London, England. She co-authored a book on baby brain pathology and was instrumental in the development of neonatal ultrasound brain scanning, now used in neonatal intensive care units worldwide. Pape then directed work at the Magee Clinic in Toronto, developing a new, personalized approach to children and adults with early onset brain or nerve damage. She has lectured widely and conducted over 200 training workshops and conferences for parents, therapists, and physicians throughout North America and internationally in 12 countries. Dr. Pape lives in Toronto, Canada.www.karenpapemd.comÂ
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Product details
Hardcover: 352 pages
Publisher: Barlow Publishing; 1 edition (September 20, 2016)
Language: English
ISBN-10: 1988025052
ISBN-13: 978-1988025056
Product Dimensions:
6.1 x 1.1 x 9.1 inches
Shipping Weight: 1.5 pounds (View shipping rates and policies)
Average Customer Review:
4.9 out of 5 stars
22 customer reviews
Amazon Best Sellers Rank:
#192,290 in Books (See Top 100 in Books)
My son was diagnosed with CP 6 months ago, and this is by far, the most helpful resource I’ve come upon. Dr. Pape understands the struggles and frustrations of families like mine, and gives advice and research to help us communicate with the rehab teams and specialists. My son is affected mildly and we continue to fall into the group of overlooked patients, because he’s ambulatory and mildly affected. There is no focus on his pain or side effects that could cause further pain, as the goal for most specialists we’ve met is simply walking. If you’re new to the CP world, this is the book to read. It gives you hope and realistic strategies to continue fighting for your child. I’m forever grateful for Dr. Pape and her work.
I was lucky enough to read an advance copy of this and I read from cover to cover without putting it down while our son was receiving therapy at a great centre who practice what Dr Pape has learned. What Dr Pape does for families of CP kids and adults is to think outside the square and show us that what we have options. The changes we have put in for our son are getting real results and we have been lucky enough to experience many changes in him and some within a day and we will continue to work on him to get him the best recovery. "Habit hides recovery" is a key concept and I would urge any parent of a CP kid to take this book and look for therapists that are willing to work with that in mind. Dr Pape is truly an revolutionary for not accepting the norm and looking at options. The day I stumbled onto a Ted talk of her's last year was truly the most life altering event for our 9 year old son, I cannot recommend this book and Dr Pape's work highly enough.
This book makes so much sense to me as an occupational therapist and mother of a child with a neurological condition. These theories will guide my treatment ideas with him. My mother, who has no medical background knowledge, read this book and took away from it a decent, basic understanding of Neuro-rehab.
Suggested for an HIE baby early on and offers real hope and stories meant to encourage. We learned a lot about what the future can hold. Highly recommend for parents with HIE children.
As a parent of a 5 year old daughter with severe quadriplegic CP, this book has really renewed my faith in the possibility for her improvement. The book was written in a way that made it easy for me (not in medical field) to understand and gave me ideas about where I need to go from here. Thanks for this great book!
Thank you Dr. Karen Pape and Dr. Pia Stampe for this book. It has been thought-provoking, challenging and eye-opening. This book has made a huge difference in my physical therapy career. This book has taught me so much as a pediatric physical therapist. I look forward to using this book in my day to day practice to make a difference in the lives of children and their families.
Great book! I am a student in physical therapy school and I had the pleasure to do a rotation in a pediatric clinic and this book was recommended to me by my clinical instructor. Very helpful for any therapist or medical provider to read!
Every parent of a child with CP and every Physical and Occupational Therapist should read this book! It is that important.
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